When 10-year-old Mafalda is diagnosed with a rare genetic illness called Stargardt disease, she knows that her already poor eyesight will get progressively worse, and eventually sheāll become blind. In order to cope, sheās written a list of all the things she wants to do now, and wonāt be able to do laterāplaying soccer, having a paper-ball-in-the-basket competition, and climbing up the school cherry tree.
Estelle, the compassionate school janitor, befriends Mafalda, and tells her, āItās not important to be able to see everything.ā She encourages Mafalda to find āthe thing thatās essential to you. Something you can do, even without your eyes.ā
Though Mafalda doesnāt understand what Estelle means, sheās clear on one thingāshe plans to escape her difficult life by running away from home and living in her beloved cherry tree, just like a character from one of her favorite books did to flee from his trials.
When Mafaldaās plans fall apart, she realizes her need for others, both family and friends. She then understands more fully their love for her, a love that wonāt abandon her to the darkness, but will do all it can to help her flourish.
This for juvenile readers is based on author Paola Perettiās experience of being diagnosed with Stargardt disease when she was a teenager, making the story particularly realistic and compelling.
Christian parents and caregivers might want to share this book with children as an empathetic window into a life-changing experience some children face, and discuss how Mafaldaās views on spirituality and life after death run counter to the truth as revealed in Godās Word. (Atheneum Books for Young Readers)
About the Author
Sonya VanderVeen Feddema is a freelance writer and a member of Covenant CRC in St. Catharines, Ontario.